Help fund INAD medical research.
Infantile Neuroaxonal Dystrophy is a rare inherited disorder. Children have a life expectancy of 5-10 years, please help us to fund urgent research to find a cure.
Cure INAD UK, together with the newly established INAD Foundation Australia, are proud to be working together to fundraise for the pioneering gene therapy program at University College London (UCL).
Read all the details in our News section that cover:
Research highlights
Path towards a clinical trial
Funding the next milestone
Trial access and participation
What this means
How you can help
Movement for Good is an annual programme of giving by the Benefact Group. This year they are awarding charities £1000.
To be in the draw and to increase our chances of winning £1000 we need as many nominations as we can get. Please spare a minute and nominate us.
We’re continuing to raise funds and spread awareness of INAD. If your place of business participates in charitable giving, please consider donating to Cure INAD UK. We are grateful for every donation received.
If you would like to organise a fundraiser we are registered with JustGiving and Gift Aid. Please get in touch if you are interested.
“INAD is a progressive, inherited, neurodegenerative condition affecting young infants and children. Children with this life-limiting condition often appear to be developing normally initially but over time, they progressively lose the ability to walk, talk, speak, eat independently, and move. There is no proven specific treatments for this condition yet. However, research (including a number of precision medicine approaches) is making good progress, providing hope for families affected by this devastating condition.”
— Dr Audrey Soo, Paediatric Neurology Clinical Researcher working on INAD.
Read the stories of children with INAD
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